Griffin had his first swimming experience yesterday! He still can't get his incision wet so it was from the waist down swimming only! He sat on the step and kicked his feet for 10 minutes. He also like watching the big kids play. After about 30 minutes he was give out! He had a fun time and we are excited to take him on the 4th of July!!
Today was Griffin's check up at ACH. He got a clean bill of health. The Dr said his x-rays were clear and that he sounded good. He also doesn't have to take any medicine any more which is good because it apparently tasted really bad. So our new orders are take it easy for at least another week. He can start swimming next weekend, and we return for a check up in 3 months to the Lowell clinic.
While we were in Little Rock I managed to talk Trey into going to Babies-r-Us. To make a long story short, we left with a new car seat, baby food and formula. I think I even managed to get some swim diapers on sale! We made a pretty good haul, and Griffin looks really comfortable in his new car seat. It's already installed you ask? Why yes!! Trey thought it was vital that he install it before we left ACH so Griffin could try it out on the way home. So I think that Trey likes babies r us!
Griffin had his first post-op doctors visit. Everything went really well. His incision has healed up nicely, and he has two scabs from his chest tubes. Today when they weighed him he had gained 1 pound since we left the hospital. His pediatrician was really pleased with how well he is doing. Trey and I leave on Thursday to go back to Little Rock. G has an appointment with Dr. K'Necht on Friday. Hopefully we will be able to start going to the regional clinic in Lowell after this visit.
Well we have been working on getting back on our schedule. Griffin is sleeping better now. He gets a little sore at night. We have to be careful not to pick him up under his arms too much. He is rolling over again, but hasn't started his crawling yet. Yesterday he pushed up on all fours a few times, but never took off. We have been trying to get him to rest a few times during the day. All in all things are going well.
We are home and settled back in! Griffin's next appointment is June 21st with his pediatrician and on the 24th we have to take him back to the cardiologist.
Griffin's doctor just came in to let us know that his echo and X-ray looked great. They are beginning the discharge process. Tonight we are going to stay in Little Rock so everyone can get a good nights rest and tomorrow we will start home!!
Well we have had a very busy day. Griffin slept really good last night. Today is taking all his medicines by mouth. He is eating well. Last night he started rolling over again. Today he has had a X-ray and an echo. The doctor was very positive when he came in. Everything is going great. Trey had to go home today. He has a drs appointment at the VA tomorrow.
Griffin is doing great. He is all settled in his new room. He ate a jar of applesauce. The ICU doctor came in and told us that Griffin is being released from the ICU. The floor doctors will now be in charge of his care. He also said that he might be discharged by Tuesday! God is good!!!
Griffin had a great night. This morning he has been laughing and playing. He is only on Tylenol with codeine for pain. He is doing great. The drs are making their rounds so maybe we will get more good news soon !
Griffin has had a great day. He got his chest tubes and pacing wires out. The only IV he has left is his central line. They are only using it right now to draw blood for his lab work. He is doing good. He is eating and playing. He has started smiling at people too. Trey made me get out of the hospital today to go eat dinner. We are all doing good. Thank you everyone for all your thoughts and prayers.
Griffin is doing great. He was moved to a different room last night. He got his chest tubes and pacing wires out today. I got to hold him today. He is doing great. Trey's dad and wife came down today. Kimber and Josh came too. We are all doing great. Thanks for the prayers.
Griffin has had a great day. He is eating well, and his oxygen levels have stayed up. He will not be able to eat after 4 in the morning because they are gojng to take his chest tubes out so they will have to give him some sedation in order to do that. Tonight be started getting a little agitated when his morphine wore off, but he was able to have a small dose to help him calm down. He is resting good now. I will update in the morning!
Griffin is doing well. He is down to only iv fluid, morphine, and antibiotics. He has been eating like his normal self. They are trying to wean him off the morphine and get him on iv ibuprofen. He has been coughing some which is good for his lungs. For the last hour he has been kicking his feet up in the air like he normally does. He is continuing to make progress. They have taken him off his oxygen and have removed one of his IV lines.
Well Griffin is in the CVICU. He is doing great. They are weaning him off of his ventilator. His blood work is continuing to improve. The nurses are awesome. I will update in the morning about how the night goes. Hopefully they will get him off his vent tonight. Thank you for the continued prayers.
Griffin is out of surgery. Everything is great. His post operative echo was good. We should be able to see him soon. The anesthesia person and surgeon should be in shortly to talk with us.
We were just updated from the operating room. He is doing great. They are having the remove some extra muscle from his pulmonary valve. The next step is to close the hole in his heart with a gortex patch. He is on a bypass machine right now so that they can work on his heart. They are going to be updating us in about another hour.
Well we have been at the hospital since 5:15. They took us back by 5:30. At 7:00 the anesthesia team came to get Griffin. They walked us up to the operating room. They are getting him hooked up to his IVs and all his extra garb. When they start the surgery they will come and tell us. I will update soon.
They should call it, scare the crap out of you day, or information overload day!! We began our day at Children's at 8:15. Our day ended at 3:45. Griffin was a trooper through the EKG, needle sticks, x-rays and random people "examining" him. We heard, "do you have any questions?" about 20 times. No I didn't have any! My brain is still trying to process all the information you just shoved into it.
After we got back to our room Griffin took a little nap and then we had dinner at The Faded Rose. Yummy!! The whole gang was there! Mommy, Daddy, Nana, Papaw, Grandma Kathy, Auntie Barb and Uncle Kevin.
Now we get to try and sleep. Hahaha!! We have to be at the hospital at 5:30. They will take him back at 7:30 and Surgery should start at 8:30. I will keep you updated more tomorrow.
We often say we are thankful for things or people in our lives. Today I was truly humbled and thankful for my co-workers, friends and family. I don't think that I could be making it each day without them. Today as I read the sweet words they had written to me about their well wishes for my little guy I felt surrounded by love. I gather my strength from these amazing people everyday, and it keeps me going each day. Words can never express mine or Trey's gratitude toward everything you all have done for us. Thank you so much.
